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(Los Angeles, California) Tourette's syndrome victim Adam Seligman and cystinosis victim Brian Smith featured. [SELIGMAN - notes psychological impact of disease on him.] Drug industry's reluctance to develop orphan drugs, prods. for treatment of rare and thus financial unprofitable diseases, and cong. approval of tax credits for industry's development of such drugs examined. [Randy SMITH - hopes congress action will result in improved situation.] Possibility of President Reagan pocket vetoing bill due to its inclusion of amendment concerned with link between radiation and cancer discussed; amendment noted sponsored by Utah Senator Orrin Hatch due to state's concern over long-term impact of nuclear testing there in 1950's. [HATCH - believes federal government owes public radiation study.] [Representative Henry WAXMAN - fears pharmaceutical industry will ignore victims of rare diseases.] Recent "Quincy" segment dealing with orphan diseases issue recalled; scenes shown. [SELIGMAN - comments.]
REPORTER: Linda Douglass
- Douglass, Linda
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